Data Privacy Statement

Effective Date: 12/01/2024

Overview:

HUMANSEQ LTD is committed to protecting the privacy and security of your personal and genetic information. This Data Privacy Statement outlines how we collect, use, disclose, and protect the data obtained through our whole genome sequencing direct-to-consumer genetic testing services, with explicit consideration for compliance with UK data protection laws.

Information We Collect:

We collect and process various types of data to provide our services. This includes, but is not limited to:

  • Personal Information: Name, date of birth, contact information.
  • Genetic Information: DNA data obtained through whole genome sequencing.
  • Health Information: Information related to genetic traits, predispositions, and health conditions.

How We Use Your Data:

Your data is used for the following purposes:

  • Providing genetic testing services and delivering results to you.
  • Conducting research to improve our services and contribute to scientific knowledge.
  • Aggregating and de-identifying data for statistical analysis, subject to your explicit consent.
  • Complying with legal and regulatory requirements.

Data Security:

We implement robust security measures to protect your data, including encryption, access controls, and regular security audits. Your genetic information is stored in secure databases, and access is restricted to authorised personnel only.

Data Sharing:

We do not sell your personal or genetic information to third parties. Limited and de-identified data may be shared with research partners only with your explicit consent, and your identity will be protected.

Your Control and Choices:

  • You have the right to access and review your genetic data.
  • You can choose to share your data for research purposes with your explicit consent or opt-out.
  • You may request the deletion of your data, subject to legal and regulatory requirements.

Data Retention:

Your data is retained for a period necessary to fulfil the purposes outlined in this statement or as required by UK law. We have implemented procedures to securely dispose of data when it is no longer needed.

Updates to Privacy Statement:

We may update this Data Privacy Statement to reflect changes in our practices. Any material changes will be communicated to you through our website or other appropriate channels.

Contact Information:

If you have questions or concerns about our data privacy practices, please contact:

HUMANSEQ LTD

Privacy Team

Privacy@Humanseq.com

By using our services, you agree to the terms outlined in this Data Privacy Statement.

Basic Overview of Our Data Workflow:

  • We are fully compliant with the General Data Protection Regulation (GDPR) and HIPAA.
  • Cloud Database Infrastructure on Amazon Web Services (AWS) to guarantee you the highest level of security.

Please contact us if you require any further information or help.

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